27 Weeks and Counting…

Today marks the 27 week mark… he’s now 14 days now. Way to go little guy… He’s at a point were he’s got a lot of obstacles to over come.. lots of them. I’m very proud of how far he’s come… But daddy need his little boy to work even harder and heal his brain. Every so many days the Doctors at the hospital change up and then they meet and share notes so the new Doctor can take over confidently. Tonight we went down to visit and we had a catch up meeting to see where everything is at.

I’ll admit that I was worried, I thought that things have turned for the worst. We were told that Ayden has developed a form of sleep apnea. He stops breathing from time to time. So the nurse on duty will rub his back and that’ll spur him on to breath again.

The Doctor today wanted to make sure that we knew the severity of the situation. There are still a lot of “he could be’s” but at the moment he’s still with us and still the most beautiful thing I’ve ever witnessed. Despite that he looks like a little old man… he’s my boy. That’s enough for me. The new Doctor seems to think that it’s definitely some sort of motor control and now the arm as well as the leg on the right side. the blood seems to be washing away now.. which is good. However damage has been done, things are not flowing properly in the head and he thinks that some logic skills are effected… possibly math abilities. But this is conjecture at the moment. A fact tho’ is that the fluid in his head is expanding and that the area that holds the fluid is now double the size it was. So keep praying… keep asking that his mind finds away to compensate for the damage. There is a chance that the apnea that is forming could be a result of the pressure on his brain. Time will tell.

I’m finding the weight of the stresses from everything is becoming noticeable on my shoulders these last days. I’m hoping that having the move over will help. But as it stands now… I keep going… we keep going. We’ll take whatever is shelled out and at the end of the day we’ll hopefully have a happy little boy.

So to end on a positive note… we’ve had a talk today, we let the whole crew know what we want to be contacted for. We signed all the forms we needed to – to allow the people there to perform all the tasks they need to. One thing that they might do is a form of spinal tap. where they draw fluid out of the spine – which draws it down out of the brain. They can test that and see if there’s infection there or other things that they look for. But at this point there’s no delay in treatment for him. They’ll do whatever he needs right away.

Lindsay also had Kangaroo time.. where they basically tuck little Ayden down into moms top.. against her skin so he can have that connection with mom… he toughed it out for 10mins and then needed to return to the special environment of the incubator.

So Lindsay is feeling quite elated at the fact that she got to hold him for the first time since he was born 14 days ago. She’s related the story to her Dad now and is just balling from the joy of holding him. I’m happy that she got that time.

So keep prayin’ keep wishing, and we’ll keep posting… Literally if it’s not on the blog – we don’t know.

thanks again to everyone for your support. – tomorrow we have to sign the papers for the house… then FRIDAY is moving day… and on that note – I’m beat… gonna crash.

night Ayden – we all love ya.